This webinar is the second in a series of three hosted by Frambu Centre for Rare Disorders and the Norwegian National Advisory Unit Aging and Health. The first webinar takes place on April 27th (in English). The third webinar takes place on May 4th (in Norwegian).
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People with intellectual disabilities can also develop cancer. Detecting and treating cancer, and supporting people with intellectual disabilities who have cancer, can be highly challenging. This is an area that has received too little attention. Some research evidence is emerging about the cancer profile of this population, which differs from the general population, and the specific treatment and support needs of people with intellectual disabilities.
The lecturers will share their research and experiences and there will be time for questions and discussions. To-day’s sessions include communication, cancer pain and palliative care. It will be useful for oncologists, nurses, biologists, researchers, epidemiologists, professional caregivers, psychiatrists, psychologists, anthropologists, family caregivers and students.
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Program April 28. 2021
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13.00-13.05
Welcome
Heidi E. Nag and Stine Skorpen
13.05-13.35
Coping with cancer and how to break bad news
Irene Tuffrey-Wijne
13.35-14.05
Palliative care and ways to discuss death and dying
Diane Willis
14.05-14.15
Short break
14.15-14.45
Cancer pain in people with intellectual disabilities
Nanda de Knegt
Cancer pain in people with intellectual disabilities – handouts
14.45-15.00
Summing up this webinar
Information on the third International Symposium on Cancer and Intellectual Disabilities in Edinburgh, Scotland, 2022/23 – The third symposium 2022
Heidi E. Nag and Stine Skorpen
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Chairs and lecturers
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Heidi E. Nag Chair of the webinar, Frambu Resource Centre for Rare Disorders, Norway. Special educational advisor at Frambu since 2005. PhD student on Smith-Magenis syndrome and challenging behaviour |
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Stine Skorpen Co-chair. Nurse Consultant, Norwegian National Advisory Unit on Ageing and Health |
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Irene Tuffrey-Wijne Professor of Intellectual Disability and Palliative Care. Faculty of Health, Social Care and Education, Kingston and St George’s, University of London, England |
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Diane Willis PhD, Edinburgh Napier University, Scotland |
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Nanda de Knegt Visiting postdoctoral at VU University, Department of Clinical Neuropsychology, Amsterdam, the Netherlands. Psychologist and research coordinator in Prinsenstichting, care center for people with intellectual disabilities, Purmerend, the Netherlands |
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Do you want to participate?
Participation is free.
You can register here
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You can follow us on Aldring og helse and Frambu
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